Patient Resources

DOWNLOADS

HELPFUL WEBSITES

• Dysautonomia Support Network  https://www.dysautonomiasupport.org 

• Standing Up to POTS  https://www.standinguptopots.org 

• Bateman Horne Center https://batemanhornecenter.org/education/

• ICanCME  https://icancme.ca/resources/patient-resources/

• Fibro Canada  https://fibrocanada.ca/en/patients 

• Long Covid Families https://longcovidfamilies.org/resources/

• Long Covid Kids https://www.longcovidkids.org/support-resources 

• Mast Cell Action https://www.mastcellaction.org/managing-triggers 

• PANDAS Network https://pandasnetwork.org/resources/parent-resources/ 

NEWS MEDIA

• Teen Vogue: Mask Bans Insult Disabled People, Endanger Our Health, and Threaten Our Ability to Protest https://www.teenvogue.com/story/mask-bans-disabled-people-protest

• Ed Yong’s Long Covid Coverage https://edyong.me/writing

  • The Atlantic: Fatigue Is So Much More Than Being Tired 

  • The Atlantic: What makes Brain Fog so Unforgiving

  • The Atlantic: Long COVID has Forced the US to take Chronic Fatigue Syndrome Seriously

• IMS Magazine: Mast Cell Activation Syndrome: Immune Response Gone Wrong https://imsmagazine.com/2025/04/28/mast-cell-activation-syndrome-immune-response-gone-wrong/

• MedCity News: The Hidden Autoimmune Disorder Affecting Our Kids: Understanding PANS and PANDAS https://medcitynews.com/2025/06/the-hidden-autoimmune-disorder-affecting-our-kids-understanding-pans-and-pandas/