This is a common type of dysautonomia where the body can't properly manage blood circulation and heart rate. When you sit or stand gravity pulls blood down to your lower body and legs. Your blood vessels don't tighten enough so blood stays pooled in your lower body. This causes your heart to beat faster than normal (tachycardia) to try to get enough blood back up to your brain.
Increased heart rate
Dizziness or lightheadedness when sitting or standing, fainting or near fainting
Heart palpitations (can feel your heart pounding or racing)
Chest pain or pressure and shortness of breath
Blood pooling in the extremities, pale face, purple hands and feet
Flushing (reddening of face, neck or upper body)
Shakiness and excessive sweating
Fatigue and sleep disturbances
Headaches, migraines and cognitive impairments
Abdominal pain, slow digestion and rapid gastric emptying
Drink water/electrolytes throughout the day maintain an appropriate fluid balance
Eat salty snacks to help control blood pressure and blood volume (always check with your doctor first)
Wear compression garments to improve circulation and prevent blood pooling
May need to lay down to manage dizziness
Use a shower chair or walking stick with a folding chair to avoid long periods of standing
Use a long shoe horn or grabber/reacher to avoid bending over unnecessarily
Learn vagal maneuvers (like humming, breathing techniques, cold water face submersion, etc.) to help manage heart rate spikes
Talk to your doctor about prescriptions to manage heart rate and blood pressure
Work with a Physical Therapist to create a safe horizontal exercise plan (like rowing or recumbent biking) to build strength without triggering flares
Work with an Occupational Therapist to make changes to your home, work, and daily routines that will reduce orthostatic stress on your body
Use a heart rate monitor to ensure your heart rate doesn't get too high; if it does, stop and rest right away to prevent a flare
Consider other general dysautonomia management (see dysautonomia page)
Standing Up to POTS https://www.standinguptopots.org
Dysautonomia Support Network https://www.dysautonomiasupport.org
Dysautonomia International https://www.dysautonomiainternational.org
The Disabled Ginger https://www.disabledginger.com/p/learning-to-live-horizontally-your