Healthcare Provider Resources

DOWNLOADS

HELPFUL WEBSITES

• Dysautonomia Support Network https://www.dysautonomiasupport.org/handbooks/ 

• Standing Up to POTS https://www.standinguptopots.org/

• Bateman Horne Center https://batemanhornecenter.org/providers/

• ICanCME https://icancme.ca/resources/clinical-resources/ 

• Long Covid The Answers https://longcovidtheanswers.com/ 

• Mast Cell Action https://www.mastcellaction.org/health-professionals

• PANDAS Network https://pandasnetwork.org/resources/clinical-resources/ 

• Dr. Rick Arseneau on ME TV: Long COVID, ME/CFS, & Fibromyalgia in Children and Teens https://youtu.be/dpI24ZhY57M?si=ZIcM6cr5edSL8FNV

RESEARCH

• Journal of Patient Experience: How to Help Your Complex Patient If You Don't Know What Is Wrong https://doi.org/10.1177/23743735221133639

• Journal of Patient Experience: The Diagnostic Journey of Dysautonomia Patients: Insights from a Patient-Reported Outcome Study  https://doi.org/10.1177/23743735251314651 

• Bateman Horne Center https://batemanhornecenter.org/research/

• RECOVER COVID https://recovercovid.org/

• Nature: Long COVID: major findings, mechanisms and recommendations https://doi.org/10.1038/s41579-022-00846-2

• Nature: The Immunology of Long COVID https://doi.org/10.1038/s41577-023-00904-7

• Nature: SARS-CoV-2 infection triggers pro-atherogenic inflammatory responses in human coronary vessels Inbox https://doi.org/10.1038/s44161-023-00336-5 

• Nature: Muscle abnormalities worsen after post-exertional malaise in long COVID https://doi.org/10.1038/s41467-023-44432-3 

• Science Direct:  Persistent neurocognitive deficits in long COVID: Evidence of structural changes and network abnormalities following mild infection https://doi.org/10.1016/j.cortex.2025.04.004

• Psychiatry and Clinical Neurosciences: Neuroimmune pathophysiology of long COVID https://doi.org/10.1111/pcn.13855

• Journal of Child and Adolescent Psychopharmacology: Clinical Evaluation of Youth with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS): Recommendations from the 2013 PANS Consensus Conference https://doi.org/10.1089/cap.2014.0084